Its a very hard decision to make, especially as you have recently lost a baby. I'm led to believe that the nuchal fold scan is for downs only and, as you say, is only 85%. I think you are a couple of weeks further on from me. I'm having the Bart's test done, which is a 12 week blood test, the nuchal fold scan and then another blood test @ 15 weeks. It has a higher detection rate than the combined/triple/quadruple tests, but then I am 37! My OH and I both agree that if there is a problem, I will have an amnio.
I have a friend who, at the age of 40, got pregnant and did not have any tests, as she is religious and would not terminate regardless of the outcome. Some would argue that to know of a problem in advance give you the opportunity to a) come to terms with it, and b) make preparations and adjustments in order to cope with a special needs child.
If you and you OH can't agree, may I suggest speaking to a genetic councillor who can give you a clearer idea of what raising a child with specific special needs will entail. Quality of life is important, not just for the child, but also you and your OH. There is much to think about.
On a lighter note, when we were discussing this issue with my MW, she was very reassuring when she said that even at my age, having a child with a chromosomal abnormality is very rare. I
t is very sad and terribly bad luck that you lost your child to Edwards, but I don't think that there is an increased risk of it happening again - unlike Downs. I really think you and your OH need to speak to a specialist about this - and very soon!
Hope this helps a little
I'm glad that you and OH have sorted things out. It is difficult and scary, especially after your previous experience.
Its deja vu for me today...I'm 11+0, although I was the same last week!! I had my scan on monday when I was 11+3, but they said that the size of 'Newt' showed I was only 10+3!!! I sort of knew I wasn't as far gone as my Dr & MW said cuz I have a 33/35 day cycle and ov'd on day 19! I have to go back to London on the 11th for another nuchal fold scan & bloods, as 'Newt' was slightly too small to use the measurements - although the were very good!
Alot of people probably won't understand this, but if I'm high risk for Downs, I will be having an amnio. if that shows positive, we will be, ehem, 'starting again' . My OH had meningitis 5 yrs ago which has left him with a neurological disorder. He really wouldn't be able to cope with a special needs child, as he himself is on alot of medication and lets say, 'has his moments'!!!!! His condition is sufficiently serious that he is being medically retired from his place of work - at the age of 46! Again, its an issue of quality of life for all concerned.
Have you had any sickness/nausea? I did have and it has eased, however I have been suffering from gastro-enteritis for the last week. I just can't seem to shake it! Whenever I eat anything, regardless of what it is, my stomach bloats up and all I wanna do is curl up to relieve the discomfort. It makes me afraid to eat! I also feel light-headed some of the time. If I'm no better by monday, I'll contact my Dr.
Hope to spk to u soon
Blimey, when you hear what other people have gone through it really does put thing in perspective, doesn't it. There but for the grace of a high power....!
Unfortunately, Devon doesn't offer nuchal fold scans on the NHS. I could have had the combined test done down here for £200, but it has a 4% false postive rate, so we decided to pay for the best test available, which is the Bart's test (aka Integrated Test). It costs £170, but we have to trek up to London for it. We think its definately worthwhile, as it has a 1% false postive, and looks at more markers therefore is more accurate in its risk assessment. Yes, OH condition is the primary reason for testing, although as u say, life is hard enough for 'normal' children in the world of today...and it won't get any easier!
Its fab that your son is doing so well. What an achievement! I hate giving presentations at the best of times, but schools & colleges now have presentations as a standard part to courses. Sometimes I think they put too much pressure on children. Many children don't want to be high flyers and are naturally shy until very much older. They develop at different rates and I dont think this is taken into consideration.
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